Joint Attention & Play for Children with Autism

Joint attention
Image by Esi Grünhagen from Pixabay

Journal

Journal of Autism and Developmental Disorders  (SNIP score 0.984) 

Article Title 

Randomized Comparative Efficacy Study of Parent-Mediated Interventions for Toddlers With Autism

Level of Evidence

  • 1A Systematic review of homogenous RCTs
  • 1B Well-designed individual RCT
  • 2A Systematic review of homogenous RCTS
  • 2B Individual prospective cohort study, low quality RCT, ecological studies; and two-group, non-randomized studies
  • 3A Systematic review of case-control studies
  • 3B Individual retrospective case-control study: one-group, non-randomized pre-post test study; cohort studies
  • Case series (and low-quality cohort and case control study)
  • Expert opinion without explicit critical appraisal

 Play as Occupation

Play is the quintessential occupation of all children. It impacts self-regulation, problem solving, confidence, emotional well being, creativity and more. In our ridiculously overscheduled culture, play is losing its footing and child development specialists are strongly advocating for people to comprehend and believe its worth. Play is fundamentally crucial right now as children live in a season of history with significant change to routines and dynamics. We are addressing important social issues, and throughout this children need time to play to help their emotional and mental health.

Uncovering the Skills That are Already There

Children with an Autism Spectrum Disorder have a different approach to many domains of life, including play. I personally believe that there is great value in children playing in a way that is naturally motivating, interesting and rewarding to them. However, I also believe that scaffolding and expanding the play skills of children with ASD is extremely beneficial. Improving play skills can lead to improved problem solving, perspective taking, relationships, communication skills and more. Meeting the child at their interests and style of play while emphasizing connection and relationship building both respects who they are while also seeking to provide them with an increased range of life skills. 

More Play is Better for Everyone!

joint attention

Also, let’s not forget how important it is for parents, siblings and friends to be able to meaningfully connect with their loved ones who have ASD. The child who expands his or her play skills is not the only person who benefits from their increased engagement in the world around them. 

So how do we go about promoting an increase in play skills for kids with an ASD?

Many children on the Autism Spectrum often seek out play that is driven by the enjoyment derived by sensory stimulation. In the clinic I have loved seeing my kids with ASD grow their play skills. What most especially brings me joy is seeing them look at me in anticipation of me doing something silly or animated and then their laughter and joy that explodes when I deliver. I also love seeing what ideas they come up with and how they try to engage me in their play scheme. I have had a lot of success in using cause and effect play with balls, blocks, cars, and figurines. We often hit a stumbling block when it comes to symbolic play. 

It’s Not “Just Play.”

I took the course, Play with a Purpose: Effective Play-Based Therapy & Early Child Development by Cari Ebert, and it was a game changer for me. It totally changed how I thought about therapy. I am purposeful, intentional and focused when it comes to getting things done in therapy. Sometimes I miss the forest for the trees. Learning about the development of play and how it impacts everything in a child’s development helped me to take a step back and fall in love with play. Parents often come to us wanting to address handwriting, shoe tying and meltdowns. All of those are occupations that I love. However, I came to see that if we neglect play, we are seriously limiting the progress we can help our kids to make in all other areas. 

Methods

Participants

Researchers recruited caregivers and 86 children with an Autism Spectrum Disorder aged 22-36 months who attended an early intervention program. The children attended the program for 30 hours per week, during which they received behavioral, speech and occupational therapy. The researchers randomly assigned children and their caregiver to receive 10 weeks of either hands-on parent training in the JASPER program or a psychoeducational intervention (PEI). 

JASPER promotes joint attention, symbolic play, engagement and regulation through a naturalistic approach. The PEI provides parents individual education and support on having children with an Autism Spectrum Disorder. 

Intervention

Parents in the PEI group spent 1 hour with an interventionist per week. They learned about Autism, details of specific behavioral impairments, principles of managing behavior, strategies for teaching new skills, improving social interaction and communication, service availability, managing parent stress, and sibling/family and community responses to Autism. 

A trained interventionist instructed parents in the JASPER group in 2 thirty minute sessions per week. Parents learned through a hands on approach the strategies of the JASPER method. Parents learned to identify their child’s developmental level of play as well as the child’s demonstration of social communication gestures. Interventionists taught parents to use strategies in a structured sequence in order to promote opportunities for their child to initiate interest in an activity or a toy. Parents also used these skills to promote joint attention in their play interactions with their children. 

Measures

Play & Joint Attention with Parents

Examiners who were blind to the interventions coded interactions between children and parents by watching 10 minute video recordings of play sessions. This occurred pretreatment, posttreatment and 6 months after the study ended. During the sessions, researchers gave parents a standard set of toys (dolls, dishes, puzzles, trucks, shape sorter and blocks) (Kasari, Gulsrud, Paparella, Hellemann, & Berry, 2015, p. 556). Parents engaged in free play with their child using these toys. Raters qualified engagement as joint engagement if the child was aware of the parent’s participation, acknowledged their parent with non-verbal language and/or used language or demonstrated following their parent’s language in play (Kasari, Gulsrud, Paparella, Hellemann, & Berry, 2015, p. 556). 

Evaluators also coded observed instances of children’s play levels, diversity of their play and instances of initiating joint attention.

Parent Stress, Language Assessment & Joint Attention with Teacher

In addition, researchers coded play interactions between children and their teacher playing together in the classroom, assessing for time spent in joint engagement. This occurred pretreatment and at the end of treatment.

Examiners used the Mullen Scales of Early Learning and Reynell Developmental Language Scales to assess receptive and expressive language skills. These items were completed pretreatment and at the follow up 6 months after intervention ended.

Parents completed the Parenting Stress Index pre-treatment, post-treatment and at the 6 month follow up, providing information about parent stress levels.

Meat and Potatoes

Duration of Joint Attention 

The data analysis demonstrated a significant increase in time spent in joint engagement for the children in the JASPER group compared to the PEI group. The children in the JASPER group’s length of time jointly engaging increased by more than double. At the six month follow up, children in the JASPER group continued to have significantly higher amounts of time spent in joint engagement than peers in the PEI group (Kasari, Gulsrud, Paparella, Hellemann, & Berry 2015, p. 558). 

Initiating Joint Attention

joint attention

No difference by treatment group existed in impacting the rate at which children initiated joint attention. So many children demonstrated such low incidences of initiation of joint attention that they did not fall within the measurable range at baseline. Taking data from the entire sample of study participants, the mean number of children initiating joint attention increased and the total number of children demonstrating initiation of joint attention increased significantly over the six months. It did not differ by group.

Functional Play Types

Children in the JASPER group demonstrated statistically significant higher types of functional play than the children in the PEI group. At the time of the 6 month follow up, the difference between the incidences of functional play between groups was not significant. 

Symbolic Play Types

The group to which children belonged had no statistically significant impact on the occurrences of symbolic play or the rate at which children increased their symbolic play skills. This remained consistent at the 6 month follow up. 

Highest Play Level Achieved

Children in the JASPER group increased more in achieving higher levels of play than their peers in the PEI group. However, at 6 months, the difference between the achievement of highest play level between groups was not significant. 

Reynell Receptive Language 

The group to which the children belonged had no impact on the rate of their receptive language improvement scores. Children in both groups improved their receptive language skills by approximately 17 months over the 9 months of the study and follow up (Kasari, Gulsrud, Paparella, Hellemann, & Berry, 2015, p. 560). 

Reynell Expressive Language 

The group to which the children belonged had no impact on the rate of their expressive language improvement scores. Children in both groups improved their receptive language skills by an average of 10 months over the 9 month time frame (Kasari, Gulsrud, Paparella, Hellemann, & Berry., 2015, p. 560).

Parent Stress Index 

Parents in the PSI group reported statistically significant lower stress in the child-related domain.  At follow up, more parents reported lower levels of stress in this domain, but there was no difference based on the group to which they belonged. Parents in the PSI and JASPER group reported insignificantly different levels of stress for the parent-related domain. 

Classroom observations 

Children in the JASPER group spent statistically significant more time jointly engaging with their teacher than their peers in the PEI group by the end of treatment. The children in the JASPER group increased from 5.7 minutes to 8.9 minutes jointly engaging with their teacher. Children in the PEI group increased from 6.9 minutes to 7.4 minutes. 

Things to Consider 

The external validity of the study is limited as the children were recruited from an early intervention program that they all attended. We all work with children who tend to come from a variety of settings and attend a variety of programs. 

It’s exciting that children in the JASPER group made gains in functional play skills and achieved higher levels of play by the end of intervention. However, the gains did not remain significantly different than those who did not receive the treatment. The authors mention exploring providing parents with sessions after intervention to ensure that the carryover at home continues. 

Carryover from Parents to Classroom

I did find it impressive that the children’s joint attention carried over to engaging with their teachers even though the children were learning the skills at home. Also noteworthy is that the children from the JASPER group continued to have higher joint attention at the time of follow up. 

I love structure and routine, and I need to learn more about the JASPER program to develop my opinion of it. You can also find more information about it here. It even seems that there is a training you can complete for free. I think it’s important to give kids the lead with play, but I do think we as adults can effectively scaffold their play by using specific techniques that may reach them most. For a lot of kids, you might not have to think too hard to figure them out. However, as kids on the Spectrum process in a unique way, we always have to be open to learning how to most effectively communicate with and reach them also. 

What Do You Think?

Have you heard of the JASPER model before? What other strategies or programs have you used to promote play skills for children on the Autism Spectrum? 

References

Kasari, C., Gulsrud, A., Paparella, T., Hellemann, G., & Berry, K. (2015). Randomized comparative efficacy study of parent-mediated interventions for toddlers with autism. Journal of Consulting and Clinical Psychology, 83(3), 554-563. doi:10.1037/a0039080

Family Peer Advocate: Empowering Minority Families

Family Peer Advocate
Image by John Hain from Pixabay

As the United States has had a great awakening to racial inequality within many of the systems in our society that impact the quality of daily life for its citizens, we as occupational therapists are likely thinking, what do I need to address in my OT practice?

I am not yet a mother. I don’t have a child with special needs, and I am not latina nor black. My empathy in providing OT services can only go so far when attempting to offer practical and comparable insight to a parent who comes from a minority background and has a child with special needs. According to the 2019 Bureau of Labor Statistics data, the demographics of race are as follows for occupational therapists. Data for occupational therapy assistants was not available.

  • White 75.7%
  • Black or African American 10.2%
  • Asian 12.4%
  • Latino 10.2%

CPS Databases. (2020, January 22). Retrieved June 9, 2020, from https://www.bls.gov/cps/cpsaat11.htm.

That being said, while we need to work to increase the diversity of OT practitioners, we must also recognize the limitations of the insight we are able to provide. The numbers make it plainly obvious that most OT’s are white, which impacts our ability to provide first hand experience. The use of Family Peer Advocates (FPA) is an example of closing that gap.

Article Details

Journal

Journal of Autism and Developmental Disorders  (SNIP score 0.984)

Article Title

Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder

Level of Evidence

  • 1A Systematic review of homogenous RCTs
  • 1B Well-designed individual RCT
  • 2A Systematic review of cohort studies
  • 2B Individual prospective cohort study, low quality RCT, ecological studies; and two-group, non-randomized studies
  • 3A Systematic review of case-control studies
  • 3B Individual retrospective case-control study; one-group, non-randomized pre-post test study; cohort studies
  • 4 Case series (and low-quality cohort and case control study)
  • 5 Expert opinion without explicit critical appraisal

Methods

Thirty nine children (31 males, 8 females) were recruited through the Young Adult Institute/National Institute for People with Disabilities network. Referral criteria was having a previous diagnosis of an Autism Spectrum Disorder (ASD) or a suspected diagnosis as indicated by a school professional, clinician or other knowledgeable individual (Jamison et. al 2017, p. 1316). Inclusion criteria was an ASD diagnosis based on the DSM-5 per psychiatric evaluation, the Autism Diagnostic Observation Schedule-2 (ADOS-2) and the Autism Diagnostic Interview-Revised.

Family Peer Advocate

The researchers found no significant differences between the FPA and the control group for age, IQ or adaptive functioning of the children. The analysis indicated no significant difference between the FPA and control group for use of the number of services prior to the study (Jamison et al. 2017). 

Selection of Family Parent Advocates

The Young Adult Institute (YAI) reached out to parents from the group who were active in the YAI community, had given presentations on supporting other parents or who staff identified as being “particularly skillful” in advocating for their family members. Four FPAs participated in the study. Each FPA worked with 3-7 families and received reimbursement for their time.

Training of Family Peer Advocates

FPAs completed 10 hours of training using an adapted Parent Empowerment Program curriculum. They spoke with a licensed social worker from YAI weekly to keep treatment fidelity. The FPAs consulted with their families at least 12 times over a 6 month period.

Family Peer Advocate

Members of the control group met with an intake specialist who determined their eligibility for services, provided program and clinic referrals to families as needed and assessed families’ level of motivation to follow through with services and recommendations (Jamison et al, 2017, p. 1317). 
All participants completed parent report measures at 3 and 6 months with a retention rate of 85%. Participants completed the following measures:

  • Maternal Autism Knowledge Questionnaire
  • Caregiver Strain Questionnaire
  • Parent Stress Index-Short Form
  • Social Support Survey
  • Family Empowerment Scale
  • Autism Service Utilization Questionnaire 

Meat and Potatoes

Investigators completed repeated measure and multivariate ANOVAs, which assess the relationship between and within multiple variables. 

Maternal Autism Knowledge Questionnaire

All participants made significant improvement in their knowledge of Autism over the 6 months regardless of the group to which they belonged. 

Parent Stress Index

Parents in the FPA group showed significantly greater improvements on the Parent Stress Index. Parents in this group also had statistically significant greater improvements on the Parental Distress, Parental Child Dysfunction Interaction and Difficult Child subtests of the PSI. 

Caregiver Strain Questionnaire

Parents in the FPA group showed statistically significant greater improvement on Objective and Subjective Internalizing subscales of the Caregiver Strain Questionnaire. Researchers found no significant improvement on the Subjective Externalizing subscale for the FPA group vs. control.

Social Support Survey & Family Empowerment Scale

Researchers found no significant improvement on the Social Support Survey  or Family Empowerment Scale for either group. Researchers found no change in utilization of ASD services for either group nor no statistically significant difference between outcomes when they analyzed groups by ethnicity. The study authors found no difference in outcomes when assessing family ethnicity, which indicates there was not a benefit to Latino-Latino vs. African-American-Latino pairings.

Things to Consider

The study authors mention that although both groups increased their knowledge of ASD, they found no improvement in service utilization. Research has shown that current systems sometimes correlate with decreased ease of access for minority families. The 6 month duration of the study and the fact the main services referred to in the study were from services through public schools could also have impacted this finding.

This study included FPAs who had high levels of education and experience in mentoring other families with children with disabilities. To increase the confidence of the use of FPAs in the community at large, a study should investigate the use of FPAs with a more diverse range of education and experience mentoring families. It would also be interesting to see the effects of male FPAs influence on family outcomes.

References

CPS Databases. (2020, January 22). Retrieved June 9, 2020, from

https://www.bls.gov/cps/cpsaat11.htm.

Jamison, J. M., Fourie, E., Siper, P. M., Trelles, M. P., George-Jones, J., Grice, A. B.,  Kolevzon, A.

(2017). Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic

Caregivers of Children with Autism Spectrum Disorder. Journal of Autism and

Developmental Disorders, 47(5), 1314–1322. doi: 10.1007/s10803-017-3045-0